Some Inspirational Places I've Found

The Trouble Tree
an inspirational story
Things that I have learned
Special Pages
Childrens Poem, Prayers, Lullabyes and Songs
very restful
Christian Inspiration
HE is always there for us
nobody knows but mother
neat reminder
for Nurses
What do angels look like
good question
Yesterday, Today and Tomorrow
excellent reminder
Appreciate the days you have
good advice
Inspiration Pointe
very restful
Differently -Abled
Differently -Abled
Fun Links
one of my pages
Prayer List
for you to post a prayer
The Child Within
acknowledging the child within each of us
Harbour Lights
very relaxing
dedicated to all lil Angel's (big or small) in need of a special prayer
inspirational message

On the Humorous Side

Warning !
I Shall Wear Purple

~Coping   with   RETT   Syndrome~

After living with Rett for almost 20 years, I've had to learn how to manage the day to day stresses involved in having a Special Needs daughter. Dani (my daughter), is not a problem herself (now), but her condition, Rett syndrome, does pose challenges I never dreamed I would face, much less have to contend with on a daily basis.

So, I have learned that the most effective way to deal with all that RETT entails is to have a huge sense of humor. Sometimes mine may border on the "sick" side, but it does help me get through those baaaad RETT days. Abraham Lincoln said it best:

"With all of the pressure that is on me both day and night, if I didn't laugh I should die."

Another way is through sharing. I share my feelings, thoughts, ideas, triumphs and woes with other RETT parents on various mailing lists. I also am fortunate enough to have very close friends with whom I can laugh and cry. And not to leave out my dear life-mate of almost 28 years, my darling Leo. He is my rock.

~A Few More Suggestions~

Robert Louis Stevenson made these suggestions over 100 years ago:

1.  Make up your mind to be happy - learn to find pleasure in simple things.

2.  Make the best of circumstances.

No one has everything and everyone has something of sorrow.

3.  Don't take yourself too seriously.

4.  Don't let criticism worry you - you can't please everybody.

5.  Don't let your neighbors set your standards - be yourself.

6.  Do things you enjoy doing but stay out of debt.

7.  Don't borrow trouble. Imaginary things are harder to bear than actual ones.

8.  Since hate poisons the soul, don't cherish enmities and grudges.

Avoid people who make you unhappy.

9.  Have many interests.

If you can't travel, read about places.

10.  Don't hold post-mortems or spend time brooding over sorrows and mistakes.

11.  Don't be the one who never gets over things.

12.  Keep busy at something. A very busy person never has time to be unhappy.

~And here are some I use ~

1. Make time for yourself, YOU are the most important person in your daughters life, and if you're not happy, how can she be happy?

2. Take a long walk when the stress builds too high. Walking gives you a chance to reflect on the most important things.

3. Journal . . . often if you write down your thoughts & feelings, you are able to better put your problems in perspective.

4. I take bubble baths, with a good book, a glass of wine & soft music. As I watch the bubbles go down the drain, I picture each bubble being a problem.

5. Laugh . . . this is really the best medicine for stress. Dr. Karl Meninger said it best: "Laughter is the cure for most of the ills of the world." Watch a funny movie, read a funny book, whatever will make you laugh.

6. Talk your problems over with a friend. Often they can give you insight you may not have seen.

7. Take a nap. Often if I can get an hours nap a day, I am better able to cope with anything.

8. If you can get out, take yourself to a movie or lunch.

9. Go shopping, we all deserve something new once in a while.

10. Hug or cuddle your RETT-angel. Dani brings me the greatest peace.

11. Never forget this . . .

"We can't form our children on our own concepts; we must take them and love them as God gives them to us."

- Johann Wolfgang von Goethe

Write to Me

I am always here to help any Rett parent get through the worst days.

E-mail: Connie

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Page last updated 4-4-99


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